Roller Coaster

We have been on quite a roller coaster ride! Not only has Jada's moods been all over the place but she has low bgs coming out of nowhere.

Diabetes is easier so we'll start there. Jada is back to spiking high at night. I check and bolus her before I go to sleep. On Monday night, she got bolused at 11 pm. Then checked again at 3:15 am (282), bolused and within an hour, she was 67. Juice, recheck 55! WTH? More juice, then she was hungry so she had some goldfish, after she came up. By now, her sleep is disturbed and she is ready to get up but luckily she did fall back asleep for a while.

Yesterday afternoon, she was playing and said she felt low. She was 55. I gave her juice and had her sit, well tried to. She was so hyper and wanted to go back outside. There was nothing in her actions to suggest that she was low. Rechecked in 15 minutes (which was bath time), she was 85. No way was she going into the tub coming up from a low with her bg only being 85 with insulin still on board! Gave her another juice then sent her off. I told them not to play long and do what they have to do and get out. She wasn't in there long, may 10 minutes. She dressed and I rechecked her, 75 with .85 IOB. I gave her enough goldfish to make up for the .85. And that was that. Of course, D being what it is (a pain in the rear) by bedtime, she was 225!

Her mood has been all over as well. For the past two school weeks, she has put up a fight for me to pick her up from school. She always wants to stay but it is time to go home! She reverted back to her old self. She was able to keep her composure during the school day but fell completely apart when she got home. We were through with this but it was back. I didn't miss it! Instead of talking to communicate, she would yell out her words one. at. a. time. She would easily become frustrated and started her screaming in Erin's ear thing again. Luckily, she wasn't getting physical. I laugh that I can throw the word "luckily" in here when talking about all of this nonsense (which really it isn't nonsense, these are real issues, but it is nicer than other words I could use).

Saturday was Erin's dance pictures. Jada decided she wanted to come so I explained to her before we left that there would be lots of people and it would loud and hectic and if she had a meltdown, I wouldn't be able to deal with it because I needed to have Erin ready for her pictures. She said she understood but I was still reluctant. We were there for an hour longer than we should have been but things went very smoothly. She got along very well with kids she doesn't know and did her own thing. I was at my wits end from all the goings on so I am very proud of her for keeping her composure. Later that afternoon, we planted some seeds in pots and they played for a while. She had a hyper and impulsive afternoon but nothing we're not used to.

Sunday morning was a whole other story. We all slept until 10:30 am except Erin played on my phone while I slept. Jada came roaming into my bed at 10:40 and was in a silly mood. It was great. Thirty minutes later, she was completely flipping out, again with her yelling, not talking, one. word. at. a. time. thing. She was trying to express that she wanted to do something that day. So I was trying to get ideas on what she wanted to do. I guess she was frustrated because she didn't really know but just knew that she wanted to do something. Who knows what goes on in her head? I sure wish I could go inside and figure it out. Then twenty minutes later, she was fine and happy again. The rest of the day went smoothly.

The past two days have been better. She hasn't fought me when I pick her up which has been fantastic. Today will be a different story since she has a doctor's appointment. She has not been yelling as much but she still get frustrated and screams at Erin. Still no physical aggression, so I am happy we haven't truly turned back all the progress.

Jada was taken off of one of her medications by Dr. O. Her last dose of it was on Friday and it can take up to nine days to fully leave her system. Dr. O thinks that this will get rid of the aggressive behavior and irritability that has returned. However, I am finding that she is a bit more hyper in the evenings now.

And on top of all of that, I feel a bit like a failure. Having to fight with the teacher and the Principal just to get Jada to be acknowledged when she raised her hand in class has taken a lot out of me. I am scared for the next battle which will be much bigger but still must be fought. I am just so tired of there always being something that I have to fight for for Jada to be safe and okay.

That is the goings on at my house.