Meeting update and Jada's afternoon!

I don't have much to say about this meeting. Nothing was accomplished. There is still nothing in writing about bathroom breaks and water or field trips. Basically, they claim that it is up to the school nurse to decide whether she feels comfortable delagating someone to supervise Jada using her pump. And she is not. Jada is too young. She isn't capable. WHATEVER! Have you given her a chance to to do it? No. Have you given anyone the opportunity to be trained and see then whether or not you feel comfortable? No. What crap is it that it is up to you? Who are you to decide this? I am her parent. Her doctor has written orders stating that Jada was to be allowed to do it. But it all up to the nurse. In her mind, the child has to be able to fully operate the pump and enter the numbers without making a mistake for her to be comfortable. HELLO! That is why you have an adult supervising her! She said that yesterday Jada was was dailing up her pump and went to far and she had to correct her. I asked her if she had given Jada a chance to notice that she was going to high? No. She didn't. She jumped in and corrected her. Bottom line is that it shouldn't be up to her. She is not Jada's mom nor her doctor. And how can you not feel comfortable with a teacher who has a diabetic child or a teacher who has diabetes doing so? Another problem is is that she talked about diabetes and insulin as if she is scared of it. Sure it is serious and yes too much insulin is dangerous. But who would want to step in and help if the person asking and explaining is scared and makes it seem like dooms day?

My next step was going to be to file a complaint with the OCR (Office of Civil Rights). Before the meeting today, Susan (ADA Advocate), spoke the 504 person for the state who just couldn't believe all this mess. She also spoke to someone else on the state level. She is very hopeful that they can get things moving with the higher ups in the state and have it trickle down to these MISINFORMED (that's for you Penny, lol) people. Since we only have a few weeks of school left, I will wait. I will just see how things turn out for next year and begin all over again. Hopefully, Betty will be retiring.

The 504 Coordinator for the parish was there also. She is just recently diagnosed as Type 2 so she happily chimed in stating that she was diabetic. She had to give herself her first insulin shot because of an antibiotic she was taking and she was SCARED to give it to herself...so imagine a six year old. Sure woman, your life is not dependent on insulin. You don't take six shots a day like these kids do. You don't poke your finger ten times a day. SURE! And to clarify, I am not meaning to lesson the Type 2 status of anyone. It was just her and the way she said it as if she was trying to make some point.

Enough about those people.

I decided to bring Jada home from school this afternoon instead of heading back to work to see if being in the afterschool program was aggrivating her mood instabilities. You see, she started Strattera at the same time she started at YMCA after school so I wasn't sure if the longer day of holding in her emotions or the medication was adding to her recent aggressive meltdowns. She was happy when I picked her up. We came home, she was starving, she ate a snack and was happy to ride with me to pick up Erin and Gus(our poodle).

Tonight was much better. No HUGE meltdowns. No agression. She was, however, on the manic side. I don't know which one I prefer. With the agressive meltdowns, she has them and they are done (sometimes they come back) but with the mania, it is just there. She is nonstop. She wants to go shopping. She is loud and ALL OVER THE PLACE. Ugh. They both suck. I wish I could just take the bipolar out of her but I can't. She did have a few aggrivations but nothing HUGE. She recovered a little quicker and overall it was much better.

So this puts a damper on things. I have hopes for getting a permanant, part-time offer at the pysch hospital I recently started at. In order to do so, I need to show that I can be there. I have other tasks that are assigned to me that I must do as well but most importantly, I have to be reliable. Being reliable is really tough these days. It seems there is always something to take care of or I just don't want to get out of bed. I feel it would be best for Jada to come home after school instead of the after school program. I feel like that would help her have a better afternoon transition especially with her mood being so unstable right now. I just don't know how to work this out since I have to continue working at my "real" job so that I can keep it if the psych hospital doesn't come through. The position at the psych hospital is where I want to be but to get there, I have to be reliable. How do I fit two jobs into an 8:30 - 2:30 work day?? Something I need to figure out.