This happened yesterday.

This happened yesterday. I was in a hurry when I wrote this so it may not all be in complete sentences and I really don't want to edit it. Makes me sick!


Jada recently got an increase dose of one of her medications. Side effect of that is increased appetite. I have seen it at home and even the school nurse noticed yesterday how much she had eaten.

Doctor appointment this morning and Jada was starving by 10 am. I fed her before bring her to school since she still had at least an hour until lunch. Or so I thought. They are eating lunch 30 minutes early because of school testing. I was never made aware of that.

I left a message for school nurse to call me because she would notice insulin on board and wanted to ask her about Jada possibly needing a morning snack and if she could be there to bolus her. This is how I found out about the change in schedule. Which I have asked to be notified about but they won't put anything in writing. Nurse was like, it is only thirty minutes.

She was like everyday?
She states that her orders from Dr. F state that Jada does not need a bolus for anything under 15 grams.
Okay. What if she eats more than 15 grams?
Are you going to have a letter from a doctor saying that Jada has to eat a snack over 15 grams everyday at 10 am?
I said if Jada needed that snack, yes I would have that.
Nurse says that she would have to call the doctor to question that. She has an obligation to question any orders that she doesn't understand.
I asked if Jada eats a snack of over 15 grams, what are the accommodations for that?
This is not a problem so why are we discussing this? You will have to talk to Ms. Betty.
She then wanted to use hypotheticals...what if she was at a meeting at another school or had a child with an allergic reaction.
I say, (Dir of Schools)says those are hypotheticals.
Again she says this is not an issue right now so we need to wait.
I explain to her that I am trying to plan for what I can see is a highly likely possibility. I just wanted to know how they could work with Jada.
She just kept saying snack under 15 grams needs no insulin. And that this isn't a problem.

Ugh.

I was trying to figure out how they accommodate Jada in this instance. I see that it is going to happen. How can they say in a meeting that they will be there if it is scheduled and then say nope can't? How can you question her doctor? I don't give you permission for that. How can say that she can only eat less than 15 carbs (which won't fill up Jada's big toe) and that is all because you are choosing not to accommodate her?

Dir of Schools and all her hypotheticals. Well here you go woman. She needs insulin and they will not answer a question.

Should it be this freaking hard to get Jada the accommodations that she needs? NO!

Adding here that as you have read, Jada's mood has been quite a handful (putting in lightly) after school this week. Maybe that was because she was starving. Eating thirty minutes earlier is a big deal for a kid who is already hungry all the time much less when her medication makes her ravenous!